New Zealand LifeCurve™ App Research Policy
I agree to help support future research, aimed at improving ageing, by allowing my anonymised data to be used in research with by the New Zealand (NZ) National LifeCurve™ Research Partnership.
The anonymised data will be used for unspecified future research into healthy ageing. No identifiable data will be used.
I have read and understood the information provided below regarding the New Zealand NZ National LifeCurve™ Research Partnership and realise that I can opt in during the registration process and once registered I can opt in or out within the account area.
Support the NZ National LifeCurve™ Research Partnership
Our users are proud to support the New Zealand (NZ) National LifeCurve™ Research Partnership’s research into improving ageing across New Zealand. You can opt in to the NZ National LifeCurve™ Research Partnership’s healthy ageing research during registration, where your anonymised data is collected as part of this service to support and improve ageing for current and future generations.
The New Zealand National LifeCurve™ Research Partnership will improve the evidence and learning on healthy ageing, living better for longer and impacting the lives of everyday people. Together we can impact long-term ageing and support healthy ageing across New Zealand.
The Bay of Plenty District Health Board Clinical School, ADL Smartcare Limited and the University of Auckland will be part of this partnership and have access to your anonymised data.
All of the data will be anonymised, so it will not be possible to provide you with an individual response from any results from future research, or to have future access to this information and request corrections to mistakes. However, general information based on healthy ageing research could be provided.
New Zealand National Research Partnership for LifeCurve™ operations
The information we collect, including your personal information, will be stored within New Zealand compliant infrastructure in Australia, as agreed with the Ministry of Health, New Zealand.
The anonymised data will be stored in a databank in Australia. The databank is operated by ADL Smartcare Limited and has extensive measures to protect your data and keep it safe. We use a combination of technical, physical and operational measures to maintain security of your data, including encryption.
The anonymised data in the databank will be stored for as long as we consider it is appropriate for understanding ageing across generations. The NZ National LifeCurve™ Research Partnership will review the data retention considerations as part of the annual Information Governance review.
The NZ National LifeCurve™ Research Partnership will agree one or more research projects which will follow strict research protocols, including review by an ethics committee. These projects will then nominate one or more researchers to have access to the NZ National LifeCurve™ Research Partnership data. They will then have secure and limited access to the anonymised data.
If you have any questions about the NZ National LifeCurve™ Research Partnership you may contact the NZ Privacy Officer at ADL Smartcare Limited.
The NZ Privacy Officer for ADL Smartcare can be contacted at email@example.com
The anonymised data we process
This research may include basic information such as your LifeCurve™ level, ethnicity, age and gender. It is possible that future research could one day help people in the same groups as you. Research protocols and a review by an ethics committee will help manage potential risks on how the anonymised data is used. However, it is also possible that research findings could be used inappropriately to support negative stereotypes, stigmatize, or discriminate against members of the same groups as you.
The NZ National LifeCurve™ Research Partnership would like to thank you for helping current and future generations to live happier and healthier lives and you can be confident that you are never identified.